Saturday, May 17, 2014

Big, Fat No-Go for Discharge Today :(

We broke the cardinal rule of heart patients following a heart surgery: We jinxed it. Like all over the place jinxed it. And now we won't be going home today.

Even after half a dozen qualified medical professionals reviewed Chase's x-ray from today and cleared us for discharge, the surgeon on call found the tiniest (very insignificant per our Resident and Fellow) pneumothorax and will not allow us to be discharged. We will need to stay inpatient and repeat the chest x-ray in the morning.

Disappointed doesn't begin to describe this feeling.

It's all our fault! The bags were packed. The car was loaded. The leads and lines were all off. Chase was dressed in "real" clothes. We told him we would be going home to see LO and E today. We literally had one hand on the door handle, awaiting the official discharge documents to get us on our way.

We were told a pneumothorax this insignificant, located near the top of his right lung, is not unusual following the removal of a chest tube. And in basically every other case, it hasn't prevented discharge.

Until today, apparently.

Guess I'd better have hubs unload the car and find some quality entertainment for our boy once we break his heart and tell him he's stuck here for another night.

Sorry for the terrible tone of my post. I'm frustrated, disappointed and sad. It's all good. Everything will be fine. This really isn't that big of a deal.

Except it kind of is. To me, at least.

Post-Fontan Day 8

Well, apparently they don't count the surgery day around here as an actual post-Fontan day, so looks like today (Friday) was technically Day 7. I won't be updating the past week of blog entries to reflect that, but suffice it to say we are heading into Day 8 tomorrow (Saturday) and as it looks right now, we will be DISCHARGED!!!

So they removed his left and right pleural chest tubes this afternoon as well as his central line. The order is already in for Dr. K to remove his medialstinal chest tube and pacing wires tomorrow morning, followed by an x-ray and echo before DISCHARGE!!!

Can you tell I'm a bit excited!?? I still can hardly believe how amazing he's done. Literally, he had just come out of heart surgery and was still intubated in the ICU at this time last week. And here we are talking about getting him out of here TOMORROW.

God has been so faithful and has heard our many prayers! We have been so blessed to have such a supportive family, amazing friends and a loving church family to help us on our journey with Chase. I cannot say enough to thank each of you who called, sent a card or gift and encouraged me with text messages throughout the last 2 weeks. Truly you were all used by God to help me through this difficult time and I will always be grateful!

Miracles happen here. Trust me.

A trip to the Atrium this morning!

Somebody was really quite happy with his Versed/Oxyxodone cocktail before his tubes were removed.

A post-removal chest x-ray. So cool!

My tired baby boy!