tag:blogger.com,1999:blog-955373852857020316.post8138566260447307069..comments2023-10-07T05:15:05.567-04:00Comments on Just Another Day...: Welcome Back?Unknownnoreply@blogger.comBlogger6125tag:blogger.com,1999:blog-955373852857020316.post-56059141069257773302010-12-09T10:38:22.226-05:002010-12-09T10:38:22.226-05:00Yes, yes and yes! Totally right there with you si...Yes, yes and yes! Totally right there with you since AG and Chase are pretty much at the same place in the heart journey. TRYING to find my way back to normal. It's a little grueling isn't it?<br /><br />Tina B.<br />Mom to AG<br /><br />PS - I am organizing a heart moms night out if you're interested.<br /><br />veybusymom2008@yahoo.comAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-955373852857020316.post-18281796407123846212010-12-09T08:36:19.844-05:002010-12-09T08:36:19.844-05:00Did you climb inside my head to retrieve this post...Did you climb inside my head to retrieve this post? Seriously it's as if we have the same brain. LOL!!! I have been going through this lately...more like the past four years....and just had this exact same conversation with a non-heart mom. Someone I honestly didn't expect to get it but she did. What an amazing friend she is for me.<br /><br />There are walls up. Some we build ourselves and some others build for us. That way everyone stays protected. No one has to talk about how they are really feeling. No one gets hurt. At least that's what everyone tells themselves but the reality is that someone does get hurt. The CHD parent gets hurt because people stop talking to them without even realizing it. As the parent we have spent the past x amount of time devoting 100% of our time to our sick child. Not to relationships with friends, family or coworkers. When we finally get time to rejoin society we find ourselves strangers in our own life. Which is sad. We still deal with a lot of issues....worry about our child....will they live.....will they not make it.....what if this happens. It never goes away and people on the outside don't realize that. So, they stop asking, stop talking about it and at times can stop listening to us because they think it is "over". As we all know it never is.<br /><br />I agree that we have to sometimes work extra hard to hang onto those relationships.....sort of put ourselves out there a bit. However, what I have learned is the REAL friends are the ones who pick up the phone and call when they know you are having a difficult time. They are always right there. They get it even if they can't relate to what we are going through. <br /><br />{{{HUG}}}Stefeniehttps://www.blogger.com/profile/04278714232697499851noreply@blogger.comtag:blogger.com,1999:blog-955373852857020316.post-36164963263416524382010-12-09T06:24:42.983-05:002010-12-09T06:24:42.983-05:00I was just having a conversation yesterday with a ...I was just having a conversation yesterday with a friend/co-worker/McCanless' teacher from last year. (So obviously someone who knows me and our family pretty well.) To condense a long conversation for you, it finally ended in just telling her that she nor anyone else will really understand how it is to be me. (Just as I don't understand how it is to be her.) She was concerned that I wasn't getting my feelings out and worried that I may explode. ;) <br /><br />Life is different when you have a child like ours. I think we are thrown into a reality that life could end at any moment and although they know that, they don't have a constant reminder staring at them in the face everyday. I don't harp or dwell on that fact, but I do face that reality and I do live my life in a way that I choose to live it. I prioritize. I don't apologize for putting my family first and other worldly things second. My decisions are made based on this. Life is so very precious! I'm here, friend! Keep on, keeping on! ;)Kacyhttps://www.blogger.com/profile/08300438008305916950noreply@blogger.comtag:blogger.com,1999:blog-955373852857020316.post-44499109621183907352010-12-09T00:26:20.317-05:002010-12-09T00:26:20.317-05:00So glad you were able to think things through and ...So glad you were able to think things through and take a step back. Selfishly, I'm really glad you're back. I have always loved your posts - I find them so helpful and inspiring. Oh, and my family is forever grateful for your tortilla recipe post! :-)Amy Bennetthttps://www.blogger.com/profile/06256967321013244018noreply@blogger.comtag:blogger.com,1999:blog-955373852857020316.post-39922434444861825352010-12-08T10:54:52.342-05:002010-12-08T10:54:52.342-05:00I know exactly what you're talking about, in f...I know exactly what you're talking about, in fact I have been updating less frequently and didn't hear anything from anyone outside of Heart Parents wondering if everything was okay? Our family and friends have seen Olivia thrive after the Glenn and because she looks good, they assume everything is fine now and we'll go back to business as usual. I tried to sit there and explain that "business as usual" will always include a heightened risk of complications or death but they sort of gloss over that and say "nah, it's good be positive". I am on board with Jenny and yourself when I'd rather be left few that have been here through the good and bad; understanding that things will never be quite the same they were before our heart babies.Anonymoushttps://www.blogger.com/profile/00676819117875581935noreply@blogger.comtag:blogger.com,1999:blog-955373852857020316.post-76606966464650985702010-12-08T09:53:44.081-05:002010-12-08T09:53:44.081-05:00Good for you Kathy on getting these feelings out. ...Good for you Kathy on getting these feelings out. This is definitely something that I would be surprised if ALL of us feel at one time or another. I have felt like Aly's heart has been a weeding out process of our family and friends, and not because we wanted to. But those left standing strong at your side are the kind of people you want there. <br />(((hugs)))Jennyhttps://www.blogger.com/profile/03815949154302796501noreply@blogger.com