Thursday, July 2, 2009


It's been 16 days since hubs and I received our precious son's shocking diagnosis of hypoplastic left heart syndrome (HLHS). It's strange to feel as if life has returned to normal, albeit a "new" normal. Hubs and I have remained extremely positive about our son's future, regardless of the many hurdles we know we'll be facing in a matter of months. It's still so scary to read about the experiences others have had who have been in the same situation as us. There are so many variables to take into account--several of which we don't even know about yet! It's still so early in our pregnancy (23 weeks! what?!) that we've only met with the Pediatric Cardiologist once and we have yet to meet the OB and surgical teams that will deliver and operate on our boy (that will happen around 32 weeks when we visit MUSC). We've started talking and thinking about the various housing options that will be available once we relocate to Charleston for the baby's birth and surgery in October. Our best guess is that we'll live there for a good 2 months -- through the Thanksgiving and Christmas holidays. I'm hopeful we can find a furnished rental somewhat close to the hospital for a decent price -- we need to make wherever we are our "home" so life can be as normal for LO as possible. Wow. There's just so much to be thinking about and planning for, and we haven't even had a chance to ask all of our questions yet or get a good "scoop" on things from the staff at MUSC! I know God is with us through this journey and He already has worked out the details. He has a perfect plan for our little boy and we're just along for the ride! I guess there's really no point to these random thoughts... I'm just unloading some of the stuff swirling around in my head.

While there is a lot to be thinking about regarding the joyous event of bringing our son into this world and ensuring his health, I am trying to stay somewhat focused on planning LO's birthday party! She'll be TWO in just over 3 weeks! I have her invitations and will be sending them out next week (not 6 weeks early like last time!). I've already purchased all of her gifts (can't WAIT to see her reaction to one in particular). All that's left is confirming with myself that I'm up to the task of making her cake and also figuring out what the lunch menu will be. I still have time though, right??

Sorry for the randomness of this post, folks. I'll try to do better next time!

1 comment:

  1. Your faith and resolve remain inspirations to me. Thank you for the value and joy you add to all of the lives around you!