Friday, January 3, 2020

Cardiology Update

This morning Chase had a routine checkup with his cardiologist. We'd been keeping an eye on his tricuspid valve regurgitation at prior appointments, but overall anticipated a straightforward appointment today.

We began with the typical height and weight measurements, followed by blood pressure readings on all four limbs, an EKG, and an O2 check. Everything was looking fine until we checked his oxygen saturation reading. For some reason, it never climbed any higher than 92-93. In the past, Chase has usually had sats around 97-99, so this was quite a bit lower than we anticipated.

We went back for the scheduled echo to check heart function and get pics for the cardiologist. Chase was a happy camper watching Cartoon Network during the echo (we NEVER watch this channel/programming at home so of course he was glued in LOL!).

I was surprised/concerned when the cardiologist, Dr. H, came into the echo room as this has never happened before. He requested the tech obtain specific views of Chase's LPA (left pulmonary artery), aortic arch, and of course tricuspid valve.

When the tech finished with what he thought the doctor needed, he left to go ask Dr. H to come back in to take a look to ensure he had everything he needed. Only Dr. H was with another patient, so our tech brought a second tech in (presumably more experienced) to double-check his work. She worked for a bit, then sent the first tech to find Dr. H. The cardiologist came in a second time and sat down at the echo machine (also never happened before). Dr. H looked around and was able to see most of what he wanted to see. Chase was such a trooper considering the echo took so much longer than usual!

Dr. H performing Chase's echo
Once the echo was complete, we went back to the exam room to discuss Dr. H's findings. Ultimately everything looked great -- heart function, tricuspid valve, LPA, liver, etc. However, Dr. H suspects that Chase may have a few collateral vessels that have formed, which would account for the decrease in oxygen saturation. His plan is for us to monitor Chase's O2 at home over the next 2 to 3 weeks to see if he holds around 92 or continues to slowly decrease. If it holds or continues to decrease, we will likely head to MUSC in Charleston for a heart catheterization.

This wasn't exactly the news we were hoping for, but we're grateful to find what we did so we can address it before it becomes a bigger problem. Please keep Chase in your prayers over the next few months as we make decisions about our next steps. If he's going to need a heart cath, we would definitely like to do it before Cinco makes his arrival. I'm trying not to stress out over what will unfold in the next few months. I know God has a perfect plan for this perfect boy of mine, and I fully trust Him!

For the first time in as long as I can recall, Dr. H wanted to draw some labs on Chase to check blood count, heart function, etc. So we left his office and had Chase's blood drawn at LabCorp. Y'all. He was NOT a fan. He got crazy worked up about it when I just explained to him what we needed to do. I felt awful. When it finally came time to have it done, I walked him through everything as best as I could and tried to settle him down. Bless his heart. This kid, who's been through three heart surgeries, countless heart caths, and a slew other procedures, flipped a major nut about one tiny little blood draw. Ultimately, he did great and they were able to get three vials for the tests Dr. H ordered. We finally we ready to head home, but not before a not-so-quick trip to Chick-fil-A during the lunch rush on a crazy rainy day! LOL!

Thanks for following along on Chase's heart journey and keeping our family in your prayers. Hugs to all!

"The Lord is at hand; do not be anxious about anything, but in everything by prayer and supplication with thanksgiving let your requests be made known to God. And the peace of God, which surpasses all understanding, will guard your hearts and your minds in Christ Jesus."    -- Philippians 5b-7

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