Also, you may want to check out my guest post on fellow heart mom Jenny's blog here.
I have a 4 ½ year old son, Noah, who was diagnosed with HLHS after delivery. Some parents learned of their child’s disease in utero, but our journey began immediately after birth. We were sent to MUSC where we learned more about our son’s condition and what the future held for us. Luckily, our journey wasn’t as bumpy as others, but still a stressful one at that. Noah went through all 3 of his scheduled surgeries without any major complications. He always gets a clean bill of health with all of his pediatric cardiology visits (although prior to his appointments, I am a nervous wreck). He is a strong, active, normal little boy that “hides” his condition well. As parents, we will always be concerned for him and carry this worry on our shoulders. We pray for God’s strength as we continue in Noah’s journey and also pray for medical advances that will help with the future of these HLHS children.
Crossing paths with Chase started way before Noah and Chase were born. Chase's mom and I worked in the same department at an insurance company. After leaving the company, we did not keep in touch much. The day of Noah’s Fontan surgery, Chase's mom emailed me not knowing much about Noah’s heart condition. To our surprise, we both were reunited in a new way.
|Isn't he such a handsome little fella?|
You can read occasional updates about Noah and his family here.