They've decided to discontinue his Milrinone (heart med) once the current bag is empty. It's on the lowest dose possible and really isn't providing significant value. He's still getting fluids through the central IV but they want to discontinue that as well and let him handle his fluid intake with drinking/eating. This means we're close to losing all of the IV lines, but the IV itself will stay in until all chest tubes are out. The tape holding this IV in place has been one of if not THE biggest source of discomfort for Chase. He'll be so excited when that thing is gone!
He's still on 1L of oxygen but they plan to wean him down to 1/2L soon. It's a delicate balance because we want to keep his o2 above the threshold, but with these chest tubes in, kids don't usually breathe very deeply (due to the pain) so we don't expect his o2 sats to jump up much until after the tubes are out.
We are still awaiting the results of the blood in his stool. It was a bit firm so they're thinking he may just need more stool softener to make it easier on him. Hoping it's that simple to address!
So a BIG praise report from this morning... Chase ate a small bowl of cocoa puffs and drank a pint of milk!! This is in addition to a few bites of a Krispy Kreme donut and a Pop-Tart! Yay, Chase!!!
We also have him on a solid Tylenol/Oxycodone regimen rotation every 2 hours and it seems to really be helping with the pain. He rested for a bit and then we played with bubbles, a new Toy Story RC toy and a Toy Story puzzle! He's acting much more like himself. Still VERY MUCH not wanting to be here, but much more like the stubborn Chase we know and love!
Our goal for this afternoon is to get him out of bed and moving around. This means a trip to the Atrium (play room) around 2PM today. Please pray he tolerates being out of bed and in a wagon as we head downstairs. I'm hopeful getting him out of his room will be a big encouragement to him!
Thanks so much for the continued prayers for our sweet boy!!!!